What is neuroendocrine tumor?

A neuroendocrine tumor is a type of tumor that affects cells of the neuroendocrine system, the system that makes and regulates hormones. These are rare tumors that most often originate in the gastrointestinal tract and lungs, but may also occur in other locations such as the pancreas and thyroid.

How do members experience neuroendocrine tumor?

Top 5 symptoms reported by people with neuroendocrine tumor*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for neuroendocrine tumor*

*Data from patients with neuroendocrine tumor, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Compare treatments taken by people with neuroendocrine tumor*

Treatment
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment

(Somatuline Depot)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
neuroendocrine tumor (1)

*Data from patients with neuroendocrine tumor, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Who has neuroendocrine tumor on PatientsLikeMe?

Age

Age Proportion # of patients
<20 0
20s 7
30s 19
40s 64
50s 133
60s 155
70+ 142

Distribution of sex

Sex

Sex Proportion # of patients
Male 145
Female 381

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What is neuroendocrine tumor?

A neuroendocrine tumor is a type of tumor that affects cells of the neuroendocrine system, the system that makes and regulates hormones. These are rare tumors that most often originate in the gastrointestinal tract and lungs, but may also occur in other locations such as the pancreas and thyroid.



Common symptoms reported by people with neuroendocrine tumor

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:



Treatments taken by people for neuroendocrine tumor

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Somatuline Depot)
Type
Prescription Drug
How many have tried
26
Tried for
neuroendocrine tumor (1)

Data from patients with neuroendocrine tumor, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Last updated:


Compare treatments taken by people with neuroendocrine tumor

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Somatuline Depot)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
neuroendocrine tumor (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with neuroendocrine tumor, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Last updated:



Who has neuroendocrine tumor on PatientsLikeMe?

  • 2 new patients joined this month
  • 486 say neuroendocrine tumor is their primary condition

Age
Age Proportion # of patients
<20 0
20s 7
30s 19
40s 64
50s 133
60s 155
70+ 142
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 4
20-29 years 8
30-39 years 14
40-49 years 14
50-59 years 20
60-69 years 12
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 145
Female 381

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 107
Not Diagnosed 8

These charts show data from neuroendocrine tumor patients who have completed their condition history
Last updated: