What is acoustic neuroma?

Acoustic neuroma is a non-cancerous tumor that develops on the nerve that connects the ear to the brain. The tumor usually grows slowly. As it grows, it presses against the hearing and balance nerves.

How do members experience acoustic neuroma?

Top 5 symptoms reported by people with acoustic neuroma*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for acoustic neuroma*

*Data from patients with acoustic neuroma, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Compare treatments taken by people with acoustic neuroma*

Treatment
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment

(Total Skin Electron Beam Therapy (TSEBT))
Perceived effectiveness
for acoustic neuroma (1 evaluation)
Side effects
Total evaluations
1
Tried for
acoustic neuroma (1)

*Data from patients with acoustic neuroma, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Who has acoustic neuroma on PatientsLikeMe?

Age

Age Proportion # of patients
<20 0
20s 2
30s 8
40s 21
50s 38
60s 43
70+ 28

Distribution of sex

Sex

Sex Proportion # of patients
Male 41
Female 98

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What is acoustic neuroma?

Acoustic neuroma is a non-cancerous tumor that develops on the nerve that connects the ear to the brain. The tumor usually grows slowly. As it grows, it presses against the hearing and balance nerves.



Common symptoms reported by people with acoustic neuroma

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:



Treatments taken by people for acoustic neuroma

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Total Skin Electron Beam Therapy (TSEBT))
Type
Procedures
How many have tried
17
Tried for
acoustic neuroma (1)

Data from patients with acoustic neuroma, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Last updated:


Compare treatments taken by people with acoustic neuroma

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Total Skin Electron Beam Therapy (TSEBT))
Perceived effectiveness
for acoustic neuroma (1 evaluation)
Side effects
Total evaluations
1
Tried for
acoustic neuroma (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with acoustic neuroma, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Last updated:



Who has acoustic neuroma on PatientsLikeMe?

  • 1 new patients joined this month
  • 106 say acoustic neuroma is their primary condition

Age
Age Proportion # of patients
<20 0
20s 2
30s 8
40s 21
50s 38
60s 43
70+ 28
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 1
20-29 years 2
30-39 years 9
40-49 years 13
50-59 years 9
60-69 years 2
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 41
Female 98

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 59
Not Diagnosed 0

These charts show data from acoustic neuroma patients who have completed their condition history
Last updated: