What is Autosomal dominant polycystic kidney disease?

Autosomal dominant polycystic kidney disease (ADPKD) is a genetic disorder characterized by the growth of numerous cysts in the kidneys. Symptoms vary in severity and age of onset but usually develop between the ages of 30 and 40. ADPKD is a progressive disease.

How do members experience Autosomal dominant polycystic kidney disease?

Top 5 symptoms reported by people with Autosomal dominant polycystic kidney disease*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for Autosomal dominant polycystic kidney disease*

Who has Autosomal dominant polycystic kidney disease on PatientsLikeMe?

Age

Age Proportion # of patients
<20 0
20s 7
30s 6
40s 10
50s 15
60s 12
70+ 2

Distribution of sex

Sex

Sex Proportion # of patients
Male 17
Female 31

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What is Autosomal dominant polycystic kidney disease?

Autosomal dominant polycystic kidney disease (ADPKD) is a genetic disorder characterized by the growth of numerous cysts in the kidneys. Symptoms vary in severity and age of onset but usually develop between the ages of 30 and 40. ADPKD is a progressive disease.



Common symptoms reported by people with Autosomal dominant polycystic kidney disease

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:



Treatments taken by people for Autosomal dominant polycystic kidney disease

Let’s build this page together! When you share what it’s like to have Autosomal dominant polycystic kidney disease through your profile, those stories and data appear here too.

Got a question about living with Autosomal dominant polycystic kidney disease? Members in the forum might have the answers.


Compare treatments taken by people with Autosomal dominant polycystic kidney disease

Let’s build this page together! When you share what it’s like to have Autosomal dominant polycystic kidney disease through your profile, those stories and data appear here too.

Got a question about living with Autosomal dominant polycystic kidney disease? Members in the forum might have the answers.



Who has Autosomal dominant polycystic kidney disease on PatientsLikeMe?

  • 0 new patients joined this month
  • 44 say ADPKD is their primary condition

Age
Age Proportion # of patients
<20 0
20s 7
30s 6
40s 10
50s 15
60s 12
70+ 2
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 0
20-29 years 2
30-39 years 0
40-49 years 0
50-59 years 0
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 17
Female 31

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 3
Not Diagnosed 0

These charts show data from ADPKD patients who have completed their condition history
Last updated: