Atypical hemolytic-uremic syndrome

What is atypical hemolytic-uremic syndrome?

Atypical hemolytic-uremic syndrome is a disease that primarily affects kidney function. It can occur at any age, causes abnormal blood clots (thrombi) to form in small blood vessels in the kidneys. These clots can cause serious medical problems if they restrict or block blood flow.

How do members experience atypical hemolytic-uremic syndrome?

Top 5 symptoms reported by people with atypical hemolytic-uremic syndrome*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Are you experiencing one or more of these symptoms? Check your symptoms and clarify your options for care using

Top treatments taken by people for atypical hemolytic-uremic syndrome*

We currently don't have enough shared data that is made public for this condition.

Let's build this page together! When you share what it's like to have atypical hemolytic-uremic syndrome through your profile, those stories and data appear here too.

Who has atypical hemolytic-uremic syndrome on PatientsLikeMe?

Age

Age Proportion # of patients
<20 0
20s 2
30s 2
40s 5
50s 6
60s 0
70+ 1

Distribution of sex

Sex

Sex Proportion # of patients
Male 4
Female 12
Learn more about our community’s experience with atypical hemolytic-uremic syndrome.

Talk to people with atypical hemolytic-uremic syndrome

17

17

members say they have this condition

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Heart, Blood, and Circulatory,Kidneys and Urinary

Learn from others like you living with atypical hemolytic-uremic syndrome.
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What is atypical hemolytic-uremic syndrome?

Atypical hemolytic-uremic syndrome is a disease that primarily affects kidney function. It can occur at any age, causes abnormal blood clots (thrombi) to form in small blood vessels in the kidneys. These clots can cause serious medical problems if they restrict or block blood flow.



Common symptoms reported by people with atypical hemolytic-uremic syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:



Treatments taken by people for atypical hemolytic-uremic syndrome

Let’s build this page together! When you share what it’s like to have atypical hemolytic-uremic syndrome through your profile, those stories and data appear here too.

Got a question about living with atypical hemolytic-uremic syndrome? Members in the forum might have the answers.


Compare treatments taken by people with atypical hemolytic-uremic syndrome

Let’s build this page together! When you share what it’s like to have atypical hemolytic-uremic syndrome through your profile, those stories and data appear here too.

Got a question about living with atypical hemolytic-uremic syndrome? Members in the forum might have the answers.



Who has atypical hemolytic-uremic syndrome on PatientsLikeMe?

  • 0 new patients joined this month
  • 13 say atypical hemolytic-uremic syndrome is their primary condition

Age
Age Proportion # of patients
<20 0
20s 2
30s 2
40s 5
50s 6
60s 0
70+ 1
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 1
20-29 years 0
30-39 years 1
40-49 years 0
50-59 years 1
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 4
Female 12

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 6
Not Diagnosed 0

These charts show data from atypical hemolytic-uremic syndrome patients who have completed their condition history
Last updated: