What is cholesteatoma?

Cholesteatoma is an abnormal skin growth in the middle ear behind the eardrum. It often develops as cysts or pouches that shed layers of old skin, which build up inside the middle ear.

How do members experience cholesteatoma?

Top 5 symptoms reported by people with cholesteatoma*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for cholesteatoma*

Who has cholesteatoma on PatientsLikeMe?

Age

Age Proportion # of patients
<20 5
20s 4
30s 16
40s 18
50s 15
60s 13
70+ 10

Distribution of sex

Sex

Sex Proportion # of patients
Male 25
Female 49

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What is cholesteatoma?

Cholesteatoma is an abnormal skin growth in the middle ear behind the eardrum. It often develops as cysts or pouches that shed layers of old skin, which build up inside the middle ear.



Common symptoms reported by people with cholesteatoma

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:



Treatments taken by people for cholesteatoma

Let’s build this page together! When you share what it’s like to have cholesteatoma through your profile, those stories and data appear here too.

Got a question about living with cholesteatoma? Members in the forum might have the answers.


Compare treatments taken by people with cholesteatoma

Let’s build this page together! When you share what it’s like to have cholesteatoma through your profile, those stories and data appear here too.

Got a question about living with cholesteatoma? Members in the forum might have the answers.



Who has cholesteatoma on PatientsLikeMe?

  • 0 new patients joined this month
  • 57 say cholesteatoma is their primary condition

Age
Age Proportion # of patients
<20 5
20s 4
30s 16
40s 18
50s 15
60s 13
70+ 10
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 8
20-29 years 6
30-39 years 5
40-49 years 1
50-59 years 0
60-69 years 2
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 25
Female 49

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 35
Not Diagnosed 2

These charts show data from cholesteatoma patients who have completed their condition history
Last updated: