What is chordoma?

Chordoma is a primary malignant bone cancer that develops from remnants of the embryonic notochord in the skull-base (head) and spine. The embryonic notochord is a structure from which the spinal column develops. Surgery is the mainstay of treatment for chordomas.

How do members experience chordoma?

Top 5 symptoms reported by people with chordoma*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for chordoma*

Who has chordoma on PatientsLikeMe?

Age

Age Proportion # of patients
<20 0
20s 1
30s 2
40s 3
50s 1
60s 1
70+ 1

Distribution of sex

Sex

Sex Proportion # of patients
Male 3
Female 5

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What is chordoma?

Chordoma is a primary malignant bone cancer that develops from remnants of the embryonic notochord in the skull-base (head) and spine. The embryonic notochord is a structure from which the spinal column develops. Surgery is the mainstay of treatment for chordomas.



Common symptoms reported by people with chordoma


Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:



Treatments taken by people for chordoma

Let’s build this page together! When you share what it’s like to have chordoma through your profile, those stories and data appear here too.

Got a question about living with chordoma? Members in the forum might have the answers.


Compare treatments taken by people with chordoma

Let’s build this page together! When you share what it’s like to have chordoma through your profile, those stories and data appear here too.

Got a question about living with chordoma? Members in the forum might have the answers.



Who has chordoma on PatientsLikeMe?

  • 0 new patients joined this month
  • 12 say chordoma is their primary condition

Age
Age Proportion # of patients
<20 0
20s 1
30s 2
40s 3
50s 1
60s 1
70+ 1
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2
20-29 years 1
30-39 years 0
40-49 years 0
50-59 years 0
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 3
Female 5

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 3
Not Diagnosed 0

These charts show data from chordoma patients who have completed their condition history
Last updated: