What is CNS lupus?

Central nervous system (CNS) lupus refers to several different neurological and/or behavioral clinical syndromes in patients with systemic lupus erythematosus (SLE). The brain and spinal cord may be affected with a variety of presentations from mild cognitive dysfunction to seizures, stroke or coma.

How do members experience CNS lupus?

Top 5 symptoms reported by people with CNS lupus*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for CNS lupus*

Who has CNS lupus on PatientsLikeMe?

Age

Age Proportion # of patients
<20 1
20s 42
30s 159
40s 382
50s 669
60s 410
70+ 133

Distribution of sex

Sex

Sex Proportion # of patients
Male 73
Female 1,749

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What is CNS lupus?

Central nervous system (CNS) lupus refers to several different neurological and/or behavioral clinical syndromes in patients with systemic lupus erythematosus (SLE). The brain and spinal cord may be affected with a variety of presentations from mild cognitive dysfunction to seizures, stroke or coma.



Common symptoms reported by people with CNS lupus

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:



Treatments taken by people for CNS lupus

Let’s build this page together! When you share what it’s like to have CNS lupus through your profile, those stories and data appear here too.

Got a question about living with CNS lupus? Members in the forum might have the answers.


Compare treatments taken by people with CNS lupus

Let’s build this page together! When you share what it’s like to have CNS lupus through your profile, those stories and data appear here too.

Got a question about living with CNS lupus? Members in the forum might have the answers.



Who has CNS lupus on PatientsLikeMe?

  • 0 new patients joined this month
  • 146 say CNS lupus is their primary condition

Age
Age Proportion # of patients
<20 1
20s 42
30s 159
40s 382
50s 669
60s 410
70+ 133
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 21
20-29 years 19
30-39 years 27
40-49 years 22
50-59 years 10
60-69 years 0
70+ years 1

Distribution of sex

Sex
Sex Proportion # of patients
Male 73
Female 1,749

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 129
Not Diagnosed 43

These charts show data from CNS lupus patients who have completed their condition history
Last updated: