What is congenital neutropenia?

Congenital neutropenia is a rare, inherited condition of the bone marrow, which leads to the decreased production of neutrophils, a type of white blood cell in the body. As such, a person with this condition will have an abnormally low count of neutrophils.

How do members experience congenital neutropenia?

Top 5 symptoms reported by people with congenital neutropenia*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for congenital neutropenia*

Who has congenital neutropenia on PatientsLikeMe?

Age

Age Proportion # of patients
<20 2
20s 0
30s 0
40s 1
50s 1
60s 0
70+ 0

Distribution of sex

Sex

Sex Proportion # of patients
Male 1
Female 3

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What is congenital neutropenia?

Congenital neutropenia is a rare, inherited condition of the bone marrow, which leads to the decreased production of neutrophils, a type of white blood cell in the body. As such, a person with this condition will have an abnormally low count of neutrophils.



Common symptoms reported by people with congenital neutropenia

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:



Treatments taken by people for congenital neutropenia

Let’s build this page together! When you share what it’s like to have congenital neutropenia through your profile, those stories and data appear here too.

Got a question about living with congenital neutropenia? Members in the forum might have the answers.


Compare treatments taken by people with congenital neutropenia

Let’s build this page together! When you share what it’s like to have congenital neutropenia through your profile, those stories and data appear here too.

Got a question about living with congenital neutropenia? Members in the forum might have the answers.



Who has congenital neutropenia on PatientsLikeMe?

  • 0 new patients joined this month
  • 3 say congenital neutropenia is their primary condition

Age
Age Proportion # of patients
<20 2
20s 0
30s 0
40s 1
50s 1
60s 0
70+ 0
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 1
20-29 years 0
30-39 years 0
40-49 years 0
50-59 years 0
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 1
Female 3

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 1
Not Diagnosed 0

These charts show data from congenital neutropenia patients who have completed their condition history
Last updated:

Let’s build this page together! When you share what it’s like to have congenital neutropenia through your profile, those stories and data appear here too.

Got a question about living with congenital neutropenia? Members in the forum might have the answers.