What is craniopharyngioma?

A craniopharyngioma is a benign tumor that develops near the pituitary gland (a small endocrine gland at the base of the brain). It most commonly affects children. It is characterized by headache, nausea, vomiting (especially in the morning), and difficulty with balance.

How do members experience craniopharyngioma?

Top 5 symptoms reported by people with craniopharyngioma*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for craniopharyngioma*

Who has craniopharyngioma on PatientsLikeMe?

Age

Age Proportion # of patients
<20 4
20s 4
30s 5
40s 6
50s 1
60s 5
70+ 1

Distribution of sex

Sex

Sex Proportion # of patients
Male 12
Female 14

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What is craniopharyngioma?

A craniopharyngioma is a benign tumor that develops near the pituitary gland (a small endocrine gland at the base of the brain). It most commonly affects children. It is characterized by headache, nausea, vomiting (especially in the morning), and difficulty with balance.



Common symptoms reported by people with craniopharyngioma

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:



Treatments taken by people for craniopharyngioma

Let’s build this page together! When you share what it’s like to have craniopharyngioma through your profile, those stories and data appear here too.

Got a question about living with craniopharyngioma? Members in the forum might have the answers.


Compare treatments taken by people with craniopharyngioma

Let’s build this page together! When you share what it’s like to have craniopharyngioma through your profile, those stories and data appear here too.

Got a question about living with craniopharyngioma? Members in the forum might have the answers.



Who has craniopharyngioma on PatientsLikeMe?

  • 0 new patients joined this month
  • 26 say craniopharyngioma is their primary condition

Age
Age Proportion # of patients
<20 4
20s 4
30s 5
40s 6
50s 1
60s 5
70+ 1
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 6
20-29 years 1
30-39 years 0
40-49 years 0
50-59 years 0
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 12
Female 14

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 10
Not Diagnosed 0

These charts show data from craniopharyngioma patients who have completed their condition history
Last updated: