What is CREST syndrome?

CREST Syndrome is a form of scleroderma that is characterized by least two of the following symptoms: calcinosis, Raynaud's phenomenon, esophageal dysfunction, sclerodactyly, telangiectasia.

How do members experience CREST syndrome?

Top 5 symptoms reported by people with CREST syndrome*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for CREST syndrome*

Who has CREST syndrome on PatientsLikeMe?

Age

Age Proportion # of patients
<20 0
20s 3
30s 6
40s 15
50s 40
60s 50
70+ 27

Distribution of sex

Sex

Sex Proportion # of patients
Male 13
Female 130

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What is CREST syndrome?

CREST Syndrome is a form of scleroderma that is characterized by least two of the following symptoms: calcinosis, Raynaud's phenomenon, esophageal dysfunction, sclerodactyly, telangiectasia.



Common symptoms reported by people with CREST syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:



Treatments taken by people for CREST syndrome

Let’s build this page together! When you share what it’s like to have CREST syndrome through your profile, those stories and data appear here too.

Got a question about living with CREST syndrome? Members in the forum might have the answers.


Compare treatments taken by people with CREST syndrome

Let’s build this page together! When you share what it’s like to have CREST syndrome through your profile, those stories and data appear here too.

Got a question about living with CREST syndrome? Members in the forum might have the answers.



Who has CREST syndrome on PatientsLikeMe?

  • 0 new patients joined this month
  • 104 say CREST syndrome is their primary condition

Age
Age Proportion # of patients
<20 0
20s 3
30s 6
40s 15
50s 40
60s 50
70+ 27
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 6
20-29 years 7
30-39 years 6
40-49 years 7
50-59 years 7
60-69 years 1
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 13
Female 130

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 50
Not Diagnosed 2

These charts show data from CREST syndrome patients who have completed their condition history
Last updated: