Dermatomyositis

What is dermatomyositis?

Dermatomyositis is one of a group of muscle diseases known as the inflammatory myopathies, which are characterized by chronic muscle inflammation accompanied by muscle weakness. The cardinal symptom is a skin rash that precedes, accompanies, or follows progressive muscle weakness.

How do members experience dermatomyositis?

Top 5 symptoms reported by people with dermatomyositis*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Are you experiencing one or more of these symptoms? Check your symptoms and clarify your options for care using

Top treatments taken by people for dermatomyositis*

*Data from patients with dermatomyositis, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Compare treatments taken by people with dermatomyositis*

Treatment
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment

(Gammaglobulin (IVIg))
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
dermatomyositis (1)
Treatment

(Prednisone Intensol)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
dermatomyositis (1)

*Data from patients with dermatomyositis, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Who has dermatomyositis on PatientsLikeMe?

Age

Age Proportion # of patients
<20 2
20s 14
30s 32
40s 50
50s 81
60s 78
70+ 41

Distribution of sex

Sex

Sex Proportion # of patients
Male 30
Female 263
Learn more about our community’s experience with dermatomyositis.

Talk to people with dermatomyositis

326

326

members say they have this condition

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Immune, Inflammatory and Infections,Skin, Hair, and Nails,Muscles, Bones and Joints

Learn from others like you living with dermatomyositis.
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