What is desmoid tumor?

A desmoid tumor, also known as aggressive fibromatosis, is a non-cancerous soft-tissue tumor; it can be locally aggressive and may recur after surgical treatment.

How do members experience desmoid tumor?

Top 5 symptoms reported by people with desmoid tumor*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for desmoid tumor*

Who has desmoid tumor on PatientsLikeMe?

Age

Age Proportion # of patients
<20 1
20s 3
30s 9
40s 14
50s 20
60s 12
70+ 3

Distribution of sex

Sex

Sex Proportion # of patients
Male 12
Female 51

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What is desmoid tumor?

A desmoid tumor, also known as aggressive fibromatosis, is a non-cancerous soft-tissue tumor; it can be locally aggressive and may recur after surgical treatment.



Common symptoms reported by people with desmoid tumor

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:



Treatments taken by people for desmoid tumor

Let’s build this page together! When you share what it’s like to have desmoid tumor through your profile, those stories and data appear here too.

Got a question about living with desmoid tumor? Members in the forum might have the answers.


Compare treatments taken by people with desmoid tumor

Let’s build this page together! When you share what it’s like to have desmoid tumor through your profile, those stories and data appear here too.

Got a question about living with desmoid tumor? Members in the forum might have the answers.



Who has desmoid tumor on PatientsLikeMe?

  • 0 new patients joined this month
  • 52 say desmoid tumor is their primary condition

Age
Age Proportion # of patients
<20 1
20s 3
30s 9
40s 14
50s 20
60s 12
70+ 3
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2
20-29 years 3
30-39 years 4
40-49 years 3
50-59 years 1
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 12
Female 51

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 18
Not Diagnosed 0

These charts show data from desmoid tumor patients who have completed their condition history
Last updated: