What is endometrial stromal sarcoma?

Endometrial Stromal Sarcomas (ESSs) are very rare malignant tumors of the uterus that form in the connective tissue (stroma) of the endometrium. It is categorized as either low-grade (slow-growing), or high-grade (fast-growing).

How do members experience endometrial stromal sarcoma?

Top 5 symptoms reported by people with endometrial stromal sarcoma*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for endometrial stromal sarcoma*

Who has endometrial stromal sarcoma on PatientsLikeMe?

Age

Age Proportion # of patients
<20 0
20s 0
30s 1
40s 4
50s 4
60s 3
70+ 1

Distribution of sex

Sex

Sex Proportion # of patients
Male 0
Female 13

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What is endometrial stromal sarcoma?

Endometrial Stromal Sarcomas (ESSs) are very rare malignant tumors of the uterus that form in the connective tissue (stroma) of the endometrium. It is categorized as either low-grade (slow-growing), or high-grade (fast-growing).



Common symptoms reported by people with endometrial stromal sarcoma

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:



Treatments taken by people for endometrial stromal sarcoma

Let’s build this page together! When you share what it’s like to have endometrial stromal sarcoma through your profile, those stories and data appear here too.

Got a question about living with endometrial stromal sarcoma? Members in the forum might have the answers.


Compare treatments taken by people with endometrial stromal sarcoma

Let’s build this page together! When you share what it’s like to have endometrial stromal sarcoma through your profile, those stories and data appear here too.

Got a question about living with endometrial stromal sarcoma? Members in the forum might have the answers.



Who has endometrial stromal sarcoma on PatientsLikeMe?

  • 0 new patients joined this month
  • 12 say endometrial stromal sarcoma is their primary condition

Age
Age Proportion # of patients
<20 0
20s 0
30s 1
40s 4
50s 4
60s 3
70+ 1
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 0
20-29 years 0
30-39 years 1
40-49 years 0
50-59 years 0
60-69 years 1
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 0
Female 13

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 3
Not Diagnosed 0

These charts show data from endometrial stromal sarcoma patients who have completed their condition history
Last updated: