What is familial adenomatous polyposis?

Familial adenomatous polyposis (FAP) is an inherited disorder characterized by cancer of the large intestine (colon) and rectum. The syndrome is characterized by the development of hundreds of adenomatous polyps in the colon and rectum of affected individuals by early adulthood.

How do members experience familial adenomatous polyposis?

Top 5 symptoms reported by people with familial adenomatous polyposis*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for familial adenomatous polyposis*

Who has familial adenomatous polyposis on PatientsLikeMe?

Age

Age Proportion # of patients
<20 0
20s 3
30s 17
40s 13
50s 23
60s 12
70+ 4

Distribution of sex

Sex

Sex Proportion # of patients
Male 17
Female 57

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What is familial adenomatous polyposis?

Familial adenomatous polyposis (FAP) is an inherited disorder characterized by cancer of the large intestine (colon) and rectum. The syndrome is characterized by the development of hundreds of adenomatous polyps in the colon and rectum of affected individuals by early adulthood.



Common symptoms reported by people with familial adenomatous polyposis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:



Treatments taken by people for familial adenomatous polyposis

Let’s build this page together! When you share what it’s like to have familial adenomatous polyposis through your profile, those stories and data appear here too.

Got a question about living with familial adenomatous polyposis? Members in the forum might have the answers.


Compare treatments taken by people with familial adenomatous polyposis

Let’s build this page together! When you share what it’s like to have familial adenomatous polyposis through your profile, those stories and data appear here too.

Got a question about living with familial adenomatous polyposis? Members in the forum might have the answers.



Who has familial adenomatous polyposis on PatientsLikeMe?

  • 0 new patients joined this month
  • 54 say familial adenomatous polyposis is their primary condition

Age
Age Proportion # of patients
<20 0
20s 3
30s 17
40s 13
50s 23
60s 12
70+ 4
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 7
20-29 years 5
30-39 years 5
40-49 years 4
50-59 years 0
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 17
Female 57

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 31
Not Diagnosed 2

These charts show data from familial adenomatous polyposis patients who have completed their condition history
Last updated: