Glycogen storage disease

What is glycogen storage disease?

Glycogen storage disease is an inherited disorder caused by the buildup of a complex sugar called glycogen in the body's cells. The accumulation of glycogen in certain organs and tissues, especially the liver, kidneys, and small intestines, impairs their ability to function normally.

How do members experience glycogen storage disease?

Top 5 symptoms reported by people with glycogen storage disease*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Are you experiencing one or more of these symptoms? Check your symptoms and clarify your options for care using

Top treatments taken by people for glycogen storage disease*

We currently don't have enough shared data that is made public for this condition.

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Who has glycogen storage disease on PatientsLikeMe?

Age

Age Proportion # of patients
<20 3
20s 4
30s 8
40s 8
50s 6
60s 5
70+ 1

Distribution of sex

Sex

Sex Proportion # of patients
Male 14
Female 20
Learn more about our community’s experience with glycogen storage disease.

Talk to people with glycogen storage disease

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39

members say they have this condition

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Endocrine, Metabolism and Nutrition

Learn from others like you living with glycogen storage disease.
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