What is myelodysplastic syndrome?

Myelodysplastic syndrome describes a group of blood disorders characterized by ineffective production of certain blood cells within the bone marrow often leading to anemia. It has been called preleukemia because it may transform to acute myelogenous leukemia.

How do members experience myelodysplastic syndrome?

Top 5 symptoms reported by people with myelodysplastic syndrome*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for myelodysplastic syndrome*

Who has myelodysplastic syndrome on PatientsLikeMe?

Age

Age Proportion # of patients
<20 1
20s 1
30s 4
40s 5
50s 12
60s 41
70+ 94

Distribution of sex

Sex

Sex Proportion # of patients
Male 75
Female 82

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What is myelodysplastic syndrome?

Myelodysplastic syndrome describes a group of blood disorders characterized by ineffective production of certain blood cells within the bone marrow often leading to anemia. It has been called preleukemia because it may transform to acute myelogenous leukemia.



Common symptoms reported by people with myelodysplastic syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:



Treatments taken by people for myelodysplastic syndrome

Let’s build this page together! When you share what it’s like to have myelodysplastic syndrome through your profile, those stories and data appear here too.

Got a question about living with myelodysplastic syndrome? Members in the forum might have the answers.


Compare treatments taken by people with myelodysplastic syndrome

Let’s build this page together! When you share what it’s like to have myelodysplastic syndrome through your profile, those stories and data appear here too.

Got a question about living with myelodysplastic syndrome? Members in the forum might have the answers.



Who has myelodysplastic syndrome on PatientsLikeMe?

  • 2 new patients joined this month
  • 122 say myelodysplastic syndrome is their primary condition

Age
Age Proportion # of patients
<20 1
20s 1
30s 4
40s 5
50s 12
60s 41
70+ 94
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 1
20-29 years 0
30-39 years 3
40-49 years 4
50-59 years 9
60-69 years 9
70+ years 7

Distribution of sex

Sex
Sex Proportion # of patients
Male 75
Female 82

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 52
Not Diagnosed 4

These charts show data from myelodysplastic syndrome patients who have completed their condition history
Last updated: