What is Nutcracker syndrome?

Nutcracker Syndrome (NCS) is a rare condition characterized by entrapment of the left renal vein. Symptoms include blood in the urine along with flank and abdominal pain. Individuals with NCS may also experience 'pelvic congestion' causing various pelvic symptoms. Treatment may include surgery.

How do members experience Nutcracker syndrome?

Top 5 symptoms reported by people with Nutcracker syndrome*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for Nutcracker syndrome*

Who has Nutcracker syndrome on PatientsLikeMe?

Age

Age Proportion # of patients
<20 1
20s 14
30s 18
40s 27
50s 18
60s 10
70+ 1

Distribution of sex

Sex

Sex Proportion # of patients
Male 6
Female 76

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is Nutcracker syndrome?

Nutcracker Syndrome (NCS) is a rare condition characterized by entrapment of the left renal vein. Symptoms include blood in the urine along with flank and abdominal pain. Individuals with NCS may also experience 'pelvic congestion' causing various pelvic symptoms. Treatment may include surgery.



Common symptoms reported by people with Nutcracker syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:



Treatments taken by people for Nutcracker syndrome

Let’s build this page together! When you share what it’s like to have Nutcracker syndrome through your profile, those stories and data appear here too.

Got a question about living with Nutcracker syndrome? Members in the forum might have the answers.


Compare treatments taken by people with Nutcracker syndrome

Let’s build this page together! When you share what it’s like to have Nutcracker syndrome through your profile, those stories and data appear here too.

Got a question about living with Nutcracker syndrome? Members in the forum might have the answers.



Who has Nutcracker syndrome on PatientsLikeMe?

  • 1 new patients joined this month
  • 65 say Nutcracker syndrome is their primary condition

Age
Age Proportion # of patients
<20 1
20s 14
30s 18
40s 27
50s 18
60s 10
70+ 1
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 4
20-29 years 4
30-39 years 4
40-49 years 2
50-59 years 2
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 6
Female 76

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 22
Not Diagnosed 0

These charts show data from Nutcracker syndrome patients who have completed their condition history
Last updated: