What is paroxysmal nocturnal hemoglobinuria?
Paroxysmal nocturnal hemoglobinuria is a type of hemolytic anemia where the body's immune system attacks its own red blood cells (RBCs), leading to their destruction (hemolysis). One characteristic of the condition is dark-colored urine due to the presence of RBCs (hemoglobinuria).
How do members experience paroxysmal nocturnal hemoglobinuria?
Top 5 symptoms reported by people with paroxysmal nocturnal hemoglobinuria*
*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Top treatments taken by people for paroxysmal nocturnal hemoglobinuria*
Who has paroxysmal nocturnal hemoglobinuria on PatientsLikeMe?
Age | Proportion | # of patients |
---|---|---|
<20 | 0 | |
20s | 2 | |
30s | 4 | |
40s | 2 | |
50s | 4 | |
60s | 1 | |
70+ | 3 |
Distribution of sex
Sex | Proportion | # of patients |
---|---|---|
Male | 8 | |
Female | 7 |