Polycystic liver disease

What is polycystic liver disease?

Polycystic Liver Disease is inherited either with liver cysts alone or with both liver and kidney cysts. The liver tissue becomes infused with cysts, resulting in a hardening of the liver texture.

How do members experience polycystic liver disease?

Top 5 symptoms reported by people with polycystic liver disease*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Are you experiencing one or more of these symptoms? Check your symptoms and clarify your options for care using

Top treatments taken by people for polycystic liver disease*

We currently don't have enough shared data that is made public for this condition.

Let's build this page together! When you share what it's like to have polycystic liver disease through your profile, those stories and data appear here too.

Who has polycystic liver disease on PatientsLikeMe?

Age

Age Proportion # of patients
<20 0
20s 1
30s 3
40s 18
50s 34
60s 32
70+ 16

Distribution of sex

Sex

Sex Proportion # of patients
Male 12
Female 93
Learn more about our community’s experience with polycystic liver disease.

Talk to people with polycystic liver disease

110

110

members say they have this condition

Join

Healthy Living

Learn from others like you living with polycystic liver disease.
Last updated:

ADVERTISEMENT

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is polycystic liver disease?

Polycystic Liver Disease is inherited either with liver cysts alone or with both liver and kidney cysts. The liver tissue becomes infused with cysts, resulting in a hardening of the liver texture.



Common symptoms reported by people with polycystic liver disease

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:



Treatments taken by people for polycystic liver disease

Let’s build this page together! When you share what it’s like to have polycystic liver disease through your profile, those stories and data appear here too.

Got a question about living with polycystic liver disease? Members in the forum might have the answers.


Compare treatments taken by people with polycystic liver disease

Let’s build this page together! When you share what it’s like to have polycystic liver disease through your profile, those stories and data appear here too.

Got a question about living with polycystic liver disease? Members in the forum might have the answers.



Who has polycystic liver disease on PatientsLikeMe?

  • 0 new patients joined this month
  • 66 say polycystic liver disease is their primary condition

Age
Age Proportion # of patients
<20 0
20s 1
30s 3
40s 18
50s 34
60s 32
70+ 16
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 4
20-29 years 1
30-39 years 4
40-49 years 4
50-59 years 3
60-69 years 2
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 12
Female 93

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 31
Not Diagnosed 0

These charts show data from polycystic liver disease patients who have completed their condition history
Last updated: