What is post-treatment Lyme disease syndrome?

Post-treatment Lyme disease syndrome (PTLDS), also known as 'chronic Lyme disease', is characterized by persistent symptoms following presumed infection with borrelia burgdorferi. Symptoms may include fatigue, joint pain, or muscle aches along with headaches or difficulty thinking or concentrating.

How do members experience post-treatment Lyme disease syndrome?

Top 5 symptoms reported by people with post-treatment Lyme disease syndrome*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for post-treatment Lyme disease syndrome*

Who has post-treatment Lyme disease syndrome on PatientsLikeMe?

Age

Age Proportion # of patients
<20 2
20s 9
30s 44
40s 63
50s 106
60s 92
70+ 60

Distribution of sex

Sex

Sex Proportion # of patients
Male 57
Female 309

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What is post-treatment Lyme disease syndrome?

Post-treatment Lyme disease syndrome (PTLDS), also known as 'chronic Lyme disease', is characterized by persistent symptoms following presumed infection with borrelia burgdorferi. Symptoms may include fatigue, joint pain, or muscle aches along with headaches or difficulty thinking or concentrating.



Common symptoms reported by people with post-treatment Lyme disease syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:



Treatments taken by people for post-treatment Lyme disease syndrome

Let’s build this page together! When you share what it’s like to have post-treatment Lyme disease syndrome through your profile, those stories and data appear here too.

Got a question about living with post-treatment Lyme disease syndrome? Members in the forum might have the answers.


Compare treatments taken by people with post-treatment Lyme disease syndrome

Let’s build this page together! When you share what it’s like to have post-treatment Lyme disease syndrome through your profile, those stories and data appear here too.

Got a question about living with post-treatment Lyme disease syndrome? Members in the forum might have the answers.



Who has post-treatment Lyme disease syndrome on PatientsLikeMe?

  • 0 new patients joined this month
  • 109 say post-treatment Lyme disease syndrome is their primary condition

Age
Age Proportion # of patients
<20 2
20s 9
30s 44
40s 63
50s 106
60s 92
70+ 60
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 10
20-29 years 19
30-39 years 41
40-49 years 29
50-59 years 21
60-69 years 4
70+ years 1

Distribution of sex

Sex
Sex Proportion # of patients
Male 57
Female 309

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 214
Not Diagnosed 7

These charts show data from post-treatment Lyme disease syndrome patients who have completed their condition history
Last updated: