What is primary sclerosing cholangitis?
Primary sclerosing cholangitis is a chronic, autoimmune inflammatory liver disorder characterized by narrowing and scarring of the lumen of the bile ducts. It is often seen in patients with ulcerative colitis.
How do members experience primary sclerosing cholangitis?
Top 5 symptoms reported by people with primary sclerosing cholangitis*
Common symptoms
How bad it is
What people are taking for it
Common symptom
Fatigue
How bad it is
What people are taking for it
Common symptom
Anxious mood
How bad it is
What people are taking for it
Common symptom
Depressed mood
How bad it is
What people are taking for it
Common symptom
Pain
How bad it is
What people are taking for it
*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Top treatments taken by people for primary sclerosing cholangitis*
Who has primary sclerosing cholangitis on PatientsLikeMe?
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 1 | |
| 20s | 6 | |
| 30s | 23 | |
| 40s | 42 | |
| 50s | 33 | |
| 60s | 34 | |
| 70+ | 16 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 65 | |
| Female | 90 |