What is progressive supranuclear palsy?

Progressive supranuclear palsy is a rare neurodegenerative disorder characterized by gait and balance difficulties and loss of coordination of eye movements.

How do members experience progressive supranuclear palsy?

Top 5 symptoms reported by people with progressive supranuclear palsy*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for progressive supranuclear palsy*

*Data from patients with progressive supranuclear palsy, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Compare treatments taken by people with progressive supranuclear palsy*

Treatment
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment

(Sinemet)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
progressive supranuclear palsy (1)

*Data from patients with progressive supranuclear palsy, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Who has progressive supranuclear palsy on PatientsLikeMe?

Age

Age Proportion # of patients
<20 0
20s 0
30s 4
40s 14
50s 11
60s 50
70+ 177

Distribution of sex

Sex

Sex Proportion # of patients
Male 121
Female 131

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What is progressive supranuclear palsy?

Progressive supranuclear palsy is a rare neurodegenerative disorder characterized by gait and balance difficulties and loss of coordination of eye movements.



Common symptoms reported by people with progressive supranuclear palsy

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:



Treatments taken by people for progressive supranuclear palsy

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Sinemet)
Type
Prescription Drug
How many have tried
106

Data from patients with progressive supranuclear palsy, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Last updated:


Compare treatments taken by people with progressive supranuclear palsy

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Sinemet)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with progressive supranuclear palsy, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Last updated:



Who has progressive supranuclear palsy on PatientsLikeMe?

  • 0 new patients joined this month
  • 299 say PSP is their primary condition

Age
Age Proportion # of patients
<20 0
20s 0
30s 4
40s 14
50s 11
60s 50
70+ 177
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 1
20-29 years 0
30-39 years 4
40-49 years 8
50-59 years 21
60-69 years 32
70+ years 16

Distribution of sex

Sex
Sex Proportion # of patients
Male 121
Female 131

Types
Condition Types Proportion # of patients
Corticobasal degeneration (CBD) 16
Progressive supranuclear palsy (PSP/Steele Richardson Olszewski Syndrome) 140
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 91
Not Diagnosed 20

These charts show data from PSP patients who have completed their condition history
Last updated: