What is pulmonary alveolar proteinosis?

Pulmonary alveolar proteinosis is a rare condition in which a type of protein accumulates in the air sacs (alveoli) of the lungs. Some symptoms include cough and shortness of breath.

How do members experience pulmonary alveolar proteinosis?

Top 5 symptoms reported by people with pulmonary alveolar proteinosis*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for pulmonary alveolar proteinosis*

Who has pulmonary alveolar proteinosis on PatientsLikeMe?

Age

Age Proportion # of patients
<20 0
20s 0
30s 2
40s 1
50s 2
60s 0
70+ 1

Distribution of sex

Sex

Sex Proportion # of patients
Male 3
Female 3

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What is pulmonary alveolar proteinosis?

Pulmonary alveolar proteinosis is a rare condition in which a type of protein accumulates in the air sacs (alveoli) of the lungs. Some symptoms include cough and shortness of breath.



Common symptoms reported by people with pulmonary alveolar proteinosis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:



Treatments taken by people for pulmonary alveolar proteinosis

Let’s build this page together! When you share what it’s like to have pulmonary alveolar proteinosis through your profile, those stories and data appear here too.

Got a question about living with pulmonary alveolar proteinosis? Members in the forum might have the answers.


Compare treatments taken by people with pulmonary alveolar proteinosis

Let’s build this page together! When you share what it’s like to have pulmonary alveolar proteinosis through your profile, those stories and data appear here too.

Got a question about living with pulmonary alveolar proteinosis? Members in the forum might have the answers.



Who has pulmonary alveolar proteinosis on PatientsLikeMe?

  • 0 new patients joined this month
  • 5 say pulmonary alveolar proteinosis is their primary condition

Age
Age Proportion # of patients
<20 0
20s 0
30s 2
40s 1
50s 2
60s 0
70+ 1
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 0
20-29 years 0
30-39 years 1
40-49 years 0
50-59 years 1
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 3
Female 3

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 2
Not Diagnosed 0

These charts show data from pulmonary alveolar proteinosis patients who have completed their condition history
Last updated:

Let’s build this page together! When you share what it’s like to have pulmonary alveolar proteinosis through your profile, those stories and data appear here too.

Got a question about living with pulmonary alveolar proteinosis? Members in the forum might have the answers.