What is retinoblastoma?

Retinoblastoma is a rare form of cancer that develops in the retina of the eye. The retina is a layer of tissue that is responsible for vision.

How do members experience retinoblastoma?

Top 5 symptoms reported by people with retinoblastoma*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for retinoblastoma*

Who has retinoblastoma on PatientsLikeMe?

Age

Age Proportion # of patients
<20 1
20s 1
30s 2
40s 1
50s 0
60s 1
70+ 1

Distribution of sex

Sex

Sex Proportion # of patients
Male 4
Female 3

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is retinoblastoma?

Retinoblastoma is a rare form of cancer that develops in the retina of the eye. The retina is a layer of tissue that is responsible for vision.



Common symptoms reported by people with retinoblastoma

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:



Treatments taken by people for retinoblastoma

Let’s build this page together! When you share what it’s like to have retinoblastoma through your profile, those stories and data appear here too.

Got a question about living with retinoblastoma? Members in the forum might have the answers.


Compare treatments taken by people with retinoblastoma

Let’s build this page together! When you share what it’s like to have retinoblastoma through your profile, those stories and data appear here too.

Got a question about living with retinoblastoma? Members in the forum might have the answers.



Who has retinoblastoma on PatientsLikeMe?

  • 0 new patients joined this month
  • 5 say retinoblastoma is their primary condition

Age
Age Proportion # of patients
<20 1
20s 1
30s 2
40s 1
50s 0
60s 1
70+ 1
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 1
20-29 years 0
30-39 years 0
40-49 years 0
50-59 years 0
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 4
Female 3

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 1
Not Diagnosed 0

These charts show data from retinoblastoma patients who have completed their condition history
Last updated:

Let’s build this page together! When you share what it’s like to have retinoblastoma through your profile, those stories and data appear here too.

Got a question about living with retinoblastoma? Members in the forum might have the answers.