Dismiss this notification
PatientsLikeMe would like to remind you that your browser is out of date and many features of the website may not function as expected.
Please update your browser
for more security and a better experience.
Retroperitoneal fibrosis is a condition characterized by fibrous masses forming in the area behind the stomach and intestines. This excess tissue can block the tubes that carry urine from the kidney to the bladder. Symptoms can include pain, discoloration of the lower limbs and urine changes.
How do members experience retroperitoneal fibrosis?
Top 5 symptoms reported by people with retroperitoneal fibrosis*
*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Top treatments taken by people for retroperitoneal fibrosis*
Who has retroperitoneal fibrosis on PatientsLikeMe?
Lithium carbonate wasn't helping ALS patients, and we learned it faster than the clinical trials did. Read about it in
Nature.
Insomnia is more common—in fact worse—for people with chronic conditions. Read about it on the
blog.
Interacting with other PatientsLikeMe members improves your health. Read it on
healthaffairs.org.
The severity of Parkinson's Disease symptoms changes faster than researchers thought, so clinical trials should be designed differently. Read about it on
JMIR.
Retroperitoneal fibrosis is a condition characterized by fibrous masses forming in the area behind the stomach and intestines. This excess tissue can block the tubes that carry urine from the kidney to the bladder. Symptoms can include pain, discoloration of the lower limbs and urine changes.
Common symptoms reported by people with retroperitoneal fibrosis
Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:
Treatments taken by people for retroperitoneal fibrosis
Let’s build this page together! When you share what it’s like to have retroperitoneal fibrosis through your profile, those stories and data appear here too.
Got a question about living with retroperitoneal fibrosis? Members in the forum might have the answers.
Compare treatments taken by people with retroperitoneal fibrosis
Let’s build this page together! When you share what it’s like to have retroperitoneal fibrosis through your profile, those stories and data appear here too.
Got a question about living with retroperitoneal fibrosis? Members in the forum might have the answers.
Who has retroperitoneal fibrosis on PatientsLikeMe?
0
new patients joined this month
33
say retroperitoneal fibrosis is their primary condition