What is scleroderma?

Scleroderma is a rare chronic autoimmune disease characterized by hardening (fibrosis) and vascular abnormalities. It is a multisystem condition that can involve the skin, joints, and internal organs, including the upper and lower digestive tract, lung, heart, and kidneys.

How do members experience scleroderma?

Top 5 symptoms reported by people with scleroderma*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for scleroderma*

Who has scleroderma on PatientsLikeMe?

Age

Age Proportion # of patients
<20 3
20s 25
30s 74
40s 127
50s 265
60s 311
70+ 175

Distribution of sex

Sex

Sex Proportion # of patients
Male 92
Female 881

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What is scleroderma?

Scleroderma is a rare chronic autoimmune disease characterized by hardening (fibrosis) and vascular abnormalities. It is a multisystem condition that can involve the skin, joints, and internal organs, including the upper and lower digestive tract, lung, heart, and kidneys.



Common symptoms reported by people with scleroderma

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:



Treatments taken by people for scleroderma

Let’s build this page together! When you share what it’s like to have scleroderma through your profile, those stories and data appear here too.

Got a question about living with scleroderma? Members in the forum might have the answers.


Compare treatments taken by people with scleroderma

Let’s build this page together! When you share what it’s like to have scleroderma through your profile, those stories and data appear here too.

Got a question about living with scleroderma? Members in the forum might have the answers.



Who has scleroderma on PatientsLikeMe?

  • 2 new patients joined this month
  • 757 say scleroderma is their primary condition

Age
Age Proportion # of patients
<20 3
20s 25
30s 74
40s 127
50s 265
60s 311
70+ 175
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 34
20-29 years 44
30-39 years 76
40-49 years 93
50-59 years 46
60-69 years 15
70+ years 3

Distribution of sex

Sex
Sex Proportion # of patients
Male 92
Female 881

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 413
Not Diagnosed 20

These charts show data from scleroderma patients who have completed their condition history
Last updated: