What is sickle cell disease?
Sickle cell disease is an inherited blood disorder that affects red blood cells (RBC), which contain mostly hemoglobin S, an abnormal type of hemoglobin. Sometimes these RBCs become crescent shaped and have difficulty passing through small blood vessels.
How do members experience sickle cell disease?
Top 5 symptoms reported by people with sickle cell disease*
Common symptoms
How bad it is
What people are taking for it
Common symptom
Weather or temperature sensitivity
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Pain
How bad it is
What people are taking for it
Common symptom
Fatigue
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Depressed mood
How bad it is
What people are taking for it
Nothing reported yet
*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Ubie symptom checker.
Top treatments taken by people for sickle cell disease*
We currently don't have enough shared data that is made public for this condition.
Let's build this page together! When you share what it's like to have sickle cell disease through your profile, those stories and data appear here too.
Who has sickle cell disease on PatientsLikeMe?
Age
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 7 | |
| 20s | 32 | |
| 30s | 55 | |
| 40s | 42 | |
| 50s | 32 | |
| 60s | 12 | |
| 70+ | 7 |
Distribution of sex
Sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 63 | |
| Female | 122 |
Learn more about our community’s experience with sickle cell disease.
Talk to people with sickle cell disease
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