What is Tourette syndrome?

Tourette syndrome is an inherited neurodevelopmental disorder with onset in childhood, characterized by the presence of multiple physical (motor) tics and at least one vocal (phonic) tic; these tics characteristically wax and wane.

How do members experience Tourette syndrome?

Top 5 symptoms reported by people with Tourette syndrome*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for Tourette syndrome*

*Data from patients with Tourette syndrome, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Compare treatments taken by people with Tourette syndrome*

Treatment
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment

(Haldol)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Tourette syndrome (1)

*Data from patients with Tourette syndrome, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Who has Tourette syndrome on PatientsLikeMe?

Age

Age Proportion # of patients
<20 15
20s 55
30s 48
40s 40
50s 23
60s 17
70+ 16

Distribution of sex

Sex

Sex Proportion # of patients
Male 81
Female 124

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What is Tourette syndrome?

Tourette syndrome is an inherited neurodevelopmental disorder with onset in childhood, characterized by the presence of multiple physical (motor) tics and at least one vocal (phonic) tic; these tics characteristically wax and wane.



Common symptoms reported by people with Tourette syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:



Treatments taken by people for Tourette syndrome

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Haldol)
Type
Prescription Drug
How many have tried
25
Tried for
Tourette syndrome (1)

Data from patients with Tourette syndrome, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Last updated:


Compare treatments taken by people with Tourette syndrome

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Haldol)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Tourette syndrome (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with Tourette syndrome, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Last updated:



Who has Tourette syndrome on PatientsLikeMe?

  • 1 new patients joined this month
  • 104 say Tourette syndrome is their primary condition

Age
Age Proportion # of patients
<20 15
20s 55
30s 48
40s 40
50s 23
60s 17
70+ 16
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 72
20-29 years 2
30-39 years 3
40-49 years 3
50-59 years 1
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 81
Female 124

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 85
Not Diagnosed 8

These charts show data from Tourette syndrome patients who have completed their condition history
Last updated: