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Von Hippel-Lindau syndrome is an inherited disorder characterized by the formation of tumors and fluid-filled sacs (cysts) in different parts of the body. Tumors usually appear during young adulthood; however, the signs and symptoms can occur throughout life.
How do members experience Von Hippel-Lindau?
Top 5 symptoms reported by people with Von Hippel-Lindau*
*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Top treatments taken by people for Von Hippel-Lindau*
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Von Hippel-Lindau syndrome is an inherited disorder characterized by the formation of tumors and fluid-filled sacs (cysts) in different parts of the body. Tumors usually appear during young adulthood; however, the signs and symptoms can occur throughout life.
Common symptoms reported by people with Von Hippel-Lindau
Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:
Treatments taken by people for Von Hippel-Lindau
Let’s build this page together! When you share what it’s like to have Von Hippel-Lindau through your profile, those stories and data appear here too.
Got a question about living with Von Hippel-Lindau? Members in the forum might have the answers.
Compare treatments taken by people with Von Hippel-Lindau
Let’s build this page together! When you share what it’s like to have Von Hippel-Lindau through your profile, those stories and data appear here too.
Got a question about living with Von Hippel-Lindau? Members in the forum might have the answers.
Who has Von Hippel-Lindau on PatientsLikeMe?
0
new patients joined this month
19
say Von Hippel-Lindau is their primary condition